Well, that month certainly sucked for Lola, though we started to turn things around near the end. Basically, we've been playing the meds game - and it's not fun. The side effects of these meds range from rage to liver damage and the list goes on. So basically we just watch her intently day and night, and fret and worry. When I called to renew her prescription, I was told that I'd exhausted my supply for the month - huh? I explained that we'd been following the dosage exactly, and that we had maybe two days left of the stuff. They had the neuro pharmacist call us back, and he questioned why she was on the syrup, when it was a 3X per day med, when our neurologist had requested an extended release caplet at 2X per day. Hmmm. Maybe that's why we haven't had total seizure relief yet. So now we're on day three of the new med (divalproex sodium) and praying that this will stop them once and for all. We still don't know where they came from, but they can return to that place at any time.
Lola's been doing great things at school - learning to sit for longer stretches of time, learning to wait her turn, etc. These are all great improvements. She gets very frustrated, but she's still inching forward despite her recent seizure setbacks. She also learned to kick a couple of weeks ago - usually just a balloon or a ball, but sometimes she likes others to know how tough she is. What else - she likes to be naughty and take off laughing, or smack the glasses off my face, laughing hysterically. This kid's a riot. (insert sarcasm here)
Other than that, we're just trying to make it through these cold, long months. Liam's doing well at school, but he goes stir crazy on the weekends. Can't wait for some extracurricular activities to start up so that he can burn off some of this energy! He finally got his hermit crabs - and he named them Flash and Smiley. I hope he doesn't pull a Lenny (Of Mice and Men) on them - they seem to hide an awful lot. He's very happy to be sharing his room with the stinky things.
Keep Calm and Carry On!
