And we're just fine with that! Lola is now eating breakfast, lunch, supper, snacks and more snacks by herself (or with us feeding her). She is only getting pediasure once per day - and after a week of that, I will stop that altogether. She is doing much better with her drinking - up to 4 ounces at a time. Unbelievable. The hard part will be getting her to take her meds orally, but she is now only on two so it should be easier than when she was having to take many more. We are still so shocked she's eating - and cheer with every mouthful she takes. She's probably sick of our clapping and yelling.
As far as medical stuff goes, she has an EEG coming up next week. She has to be sleep deprived, so she's woken up at 4 am and her appointment is at 7:45. They will attach electrode/wire things to her scalp with this sticky gross glue which takes forever to get out of her hair, and they will record her brain's activity to determine if she is having any seizure activity. Her neurologist will get the results of this test and we'll discuss it at our appointment the week after. Fingers crossed it goes well. Lola HATES this test and will scream the whole time. (then I get to drive her home, then bolt back to work).
Lola's still working on the walking thing. She does a lot of "downward dog", and pulls up on the couch and walks around the furniture. She has some big crashes, but she's doing really great.
And she's just waking up for the day so I'd better go get her! Little Miss does not like to wait.
oh you smart little muchkin! what is going on over there? it's like all of a sudden Lolly's just taking off. this is so darned exciting! eating, standing, scooting all around and now she's drinking too?! you must be so proud and excited for her. i'm loving hearing all of this. also hope that Liam is happy to be back at school and all is well with the daily routine. still praying for all of you guys and lets hope you get thru the EEG ok. love you guys xo
ReplyDeleteShe sounds like she's doing amazing! Way to go Lola!
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