To say it's been a busy month at the Exley household would be an understatement! Baseball has started for Liam, bike season for Stephen, musical/drama festival/play season for me, and of course all of Lola's ongoing therapies/playgroups, etc. It's kept us hopping. Lola just recently decided that Topamax has to go, so she started having drop seizures again to further illustrate that point. We're down to 25 mg am/pm, and will continue to decrease after we hear from the neuro on Tuesday. Of course these things tend to happen on long weekends and holidays. sigh. She hasn't bonked her head though, so we're just keeping a very close eye on her every second of the day. Her next IVIG is scheduled for May 31.
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