Friday, November 13, 2009

Busy week

Lola was a busy girl this week, with visits from the Occupational Therapist/Physio/Speech path, as well as her Developmental Specialist (Deannie) whom she works with Mon-Thurs. She also got to go to her feeding/play group on Tuesday with Deannie, and I guess she did great by all reports. She has taught herself to use a straw sippy cup! It's so great! She wanders around holding it under her left arm until she's thirsty again. When she's finished, she throws it across the room, in true Lola form! This week, she's been fascinated by Riley, our black lab. She's giggling at him as I type. It's like she just realized he's furry and about her height. Anyway, she follows him around all the time, and laughs at him. I don't think he's too impressed. She has also discovered her toys! She now digs through toyboxes until she finds just what she's looking for. She makes huge messes and walks away smiling. What a bum. She also loves to clear off countertops/desks/etc. eat remotes and blackberries (the phone, not the fruit...), and run when she hears music. She's been a blast this week, albeit insanely busy.
Next week in physio they're going to try her in a weighted vest - I did some research, and basically it should help her to focus/calm her down. At least it's not a helmet!
So we're still scheduled for g-tube removal on the 26th - so exciting! Next on the horizon is another EEG (poor girl)/neuro visit to make sure the Keppra is controlling any subclinical seizures (aka ones we don't see).

Liam's recovered from his cold/H1N1/cough/whatever that was, but has this crazy allergic rash we can't figure out. So we're washing all his blankets/sheets in hot water with a sensitive skin detergent and giving him oatmeal baths.

If it's not one kid, it's the other.

Life's good. Busy, but good.

Thanks for the love and prayers. xo Please keep my stepsister, Micheline, in your thoughts and prayers as well if you can spare them. She's nearing the three week mark in a coma recovering from double pneumonia/H1N1. I miss hearing her laugh. And I keep hearing her say, "Hey, Gilly, d'you know what?..." This is a very difficult time for Mike and the kids - can't stop thinking about them.

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