Liam and Steve are raring to go - they're heading to Whistler tomorrow, where they'll stay for a week. Liam is going to go to bike camp for a few days, so he is pretty excited. Steve will be riding (of course) - let's hope they get some decent weather.
Grampa Ed visited for a week, and the kids loved to have him here. He had to sleep in Lola's princess room, which was kind of funny. Riley got a million walks, Liam got to play about 87 games each of Ducks in a Row, Spot the Difference, Battleship, Candyland - you name it, and Lola had some quiet time with Grampa reading books. It was really nice to have him here and meant the world to Liam.
Stephen the Neurologist - so we had a neuro appt a couple of weeks ago, where we expressed our concerns about Lola's seizures. What to do...what to do. We discussed meds, ketogenic diet, and surgery. We all agreed that surgery is way way way down the road, and that the meds weren't working regardless of the dosage or combination. Lola was a pickle in the appointment, so we took turns taking her down the hall, out to the van, etc. On one of these trips, Steve told the neuro he wasn't happy with the "wait and see" attitude and wanted something done today. He suggested Trileptal, and the neuro thought it was worth a try. Well, she has not had one tonic seizure since we started the med. Seriously! She's still having drop/atonic seizures, but things are certainly on an upswing right now. I almost hate to post - don't want to jinx it. When we were in Fernie last weekend, she was not in a good state at all - constant seizures, very unhappy, post-ictal most of the trip. We were so worried. So anyway, we're praying that this new pattern holds not only for our trip to Vancouver Island, but just in general as she's doing so much better.
Okay, I should get packing. I have to have Lola and I totally packed because the boys are taking all our luggage with them - Lola and I fly (yay, airmiles) to Vancouver next Friday and we want to travel light!
Grampa Ed visited for a week, and the kids loved to have him here. He had to sleep in Lola's princess room, which was kind of funny. Riley got a million walks, Liam got to play about 87 games each of Ducks in a Row, Spot the Difference, Battleship, Candyland - you name it, and Lola had some quiet time with Grampa reading books. It was really nice to have him here and meant the world to Liam.
Stephen the Neurologist - so we had a neuro appt a couple of weeks ago, where we expressed our concerns about Lola's seizures. What to do...what to do. We discussed meds, ketogenic diet, and surgery. We all agreed that surgery is way way way down the road, and that the meds weren't working regardless of the dosage or combination. Lola was a pickle in the appointment, so we took turns taking her down the hall, out to the van, etc. On one of these trips, Steve told the neuro he wasn't happy with the "wait and see" attitude and wanted something done today. He suggested Trileptal, and the neuro thought it was worth a try. Well, she has not had one tonic seizure since we started the med. Seriously! She's still having drop/atonic seizures, but things are certainly on an upswing right now. I almost hate to post - don't want to jinx it. When we were in Fernie last weekend, she was not in a good state at all - constant seizures, very unhappy, post-ictal most of the trip. We were so worried. So anyway, we're praying that this new pattern holds not only for our trip to Vancouver Island, but just in general as she's doing so much better.
Okay, I should get packing. I have to have Lola and I totally packed because the boys are taking all our luggage with them - Lola and I fly (yay, airmiles) to Vancouver next Friday and we want to travel light!
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