Ketogenic Diet

After an hour-long phone call last night with a dietician at ACH who specializes in the Ketogenic Diet, we have decided that we will be starting the diet as soon as we can. This diet helps to control or decrease seizures that are resistant to meds. When meds aren't doing the trick, this diet is often a next step. It dates back to biblical times - it is a type of starvation diet. Don't worry, Old Lolly the food lover won't be starved, but she will be carb/sugar limited. If you would like to read about the diet, this is a good place to start:
www.charliefoundation.org
So Lola and I will have to stay at the hospital for roughly five days in order to begin the diet. She needs to be inpatient so that her ketone/blood sugar/etc. can be closely monitored. It is a very precise diet - everything she eats needs to be weighed and calculated.
Since we added Trileptal to the Divalproex Sodium, Lola is doing so much better. We emailed her neurologist, who agreed it was these drugs in combination that seem to be working for Lola - and she increased the Trileptal by one pill. So today is day one of two Trileptal pills (250 mg) am, (125 mg pm), added to the 250 BID of Epival. Pray that we aren't pushing it and that the drop seizures continue to abate.

Steve and Liam left for Whistler this morning. Boy, is it quiet around here! So today I've got some loose ends to tie up because Leni will also be off for the next two weeks. Lola and I will be batching it! We sent all our clothes/toys/stuff with the boys so that all we're taking on the flight is a carseat/stroller/carry-on bag. Thankfully it's a quick flight!